Tuesday, March 3, 2015

Living with endo is...

Exhausting. The pain takes so much energy. Then there's the energy trying to get people to take the pain seriously, it's not in our head. It really is this intense. We aren't seeking attention. We aren't drug seekers. The energy we use convincing ourselves that we can make it through another day full of pain. The energy trying to hide the pain. All the unknown about when we're going to hurt. We can't plan anything really. And we feel SOOO guilty when we have to cancel because the pain is just too much. There's a term coined "painsomnia", meaning we can't sleep because we're in too much pain. This happens many nights and just adds to the exhaustion. Why do you think we have those dark circles under our eyes? They don't go away no matter how much sleep we get.

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