Well here's an update...

So since my pain hasn't gotten better, in fact I think it's gotten worse Dr. Arrington(endo specialist who did my last surgery) wanted me tested for pelvic floor dysfunction and interstitial cystitis(aka IC). Well yesterday I saw my gynecologist to be accessed for pfd and after the exam I got the good news that my pelvic floor is fine. BUT that means that IC is most likely the cause of the pain. Yet another condition with no cure. It's very common in women with endo. SO many of my symptoms fit.
It explains why things that are supposed to help muscle spasms help my pain a TON, the painful bowel movements, the pain in the nether regions, why my pain increases as my bladder fills up, why when I pee it feels like my insides are being crushed and so much more. I have an appointment with the urologist on September 16th. He'll most likely start with a urine analysis and culture. Then an ultrasound after I pee to see how much if any urine I'm retaining. After that probably a camera up my urethra(tube from bladder to outside of body) to look at the inside of my bladder and he'll probably take biopsies during the cystoscopy. I'm already doing almost all the things they tell you to try first and obviosly they aren't helping, at least not enough. I guess this is the start of another journey you'll take with me...

Emotional Throw Up

I don't even know if anyone actually reads these, and if they do do they even care? I've withdrawn a lot these past few months because I didn't want anyone to know that I've gotten worse. My pain has spiked and I'm having more bad days than good days again. People don't like hearing the same old story, the same excuses, the same lies that "I'm doing good.".  People don't realize that when you're sick your social life consists of my family, Sam and dr.'s appointments. I don't interact with anyone else. I only leave the house to go to the dr.'s and to the dairy with Sam( the joys of harvest season. Only way I get to spend time with him is to go milking with him.). People are too busy living their own lives that they can't take the time to sit and watch a movie with me. Their lives are so "go, go, go" that they don't even think to stop and think about how I'm doing.

How I spent the 4th of July

After my colonoscopy/endoscopy April 2015

Through all of this Sam has stayed by my side. He's gone to dr.'s appointments, he even took me for my colonoscopy/endoscopy because my parents couldn't. He never holds my health against me. To him I'm just me. I'm not the sick Kate or the healthy Kate. I'm just his Kate. I don't know where I'd be without him. He's brought me out of the pits of despair several times. When I feel like I can't go on living like this he's right there telling me I can. Giving me a reason to hang on. I know I wouldn't still be here without him. These last two and a half years have been the happiest of my life, the hardest but none the less the happiest. I can't even put into words how much Sam means to me. I always brag about him to everyone, not to rub it in their face but trying to show Sam what he is to me.

Anyways, I have a few dr.s appointments and most likely tests  coming up in the near future to diagnose additional conditions. I'll try and keep everyone updated but please understand if I don't want to talk. It's going to take time to process the test results and be able to get me functioning again.

Well, bye for now.