So since my pain hasn't gotten better, in fact I think it's gotten worse Dr. Arrington(endo specialist who did my last surgery) wanted me tested for pelvic floor dysfunction and interstitial cystitis(aka IC). Well yesterday I saw my gynecologist to be accessed for pfd and after the exam I got the good news that my pelvic floor is fine. BUT that means that IC is most likely the cause of the pain. Yet another condition with no cure. It's very common in women with endo. SO many of my symptoms fit.
It explains why things that are supposed to help muscle spasms help my pain a TON, the painful bowel movements, the pain in the nether regions, why my pain increases as my bladder fills up, why when I pee it feels like my insides are being crushed and so much more. I have an appointment with the urologist on September 16th. He'll most likely start with a urine analysis and culture. Then an ultrasound after I pee to see how much if any urine I'm retaining. After that probably a camera up my urethra(tube from bladder to outside of body) to look at the inside of my bladder and he'll probably take biopsies during the cystoscopy. I'm already doing almost all the things they tell you to try first and obviosly they aren't helping, at least not enough. I guess this is the start of another journey you'll take with me...
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