As you guys probably know I had surgery on December 10th, 2015. Dr. Arrington was looking for endometriosis or something else to explain my pain. I had a cystoscopy and a colonoscopy done while I was under to check for endo or other diseases in my bladder and bowels. Those both were clear. My bladder and bowels are perfect.
Well he found an answer during the laparoscopy! He found what he thought at the time was endometriosis just past the prior excision margins, around the abdominal side of my cervix and over a major blood vessel. He also found some strange thickening. Everything was excised except the lesion over the major blood vessel, he decided excision was too risky and opted to burn the lesion into oblivion. Pathology revealed the lesions were
endosalpingiosis and the thickening was just scar tissue. Endosalpingiosis is similar to endo in its misplaced cells from the reproductive organs. Endometriosis is misplaced uterine lining while endosalpingiosis is misplaced fallopian tube cells. Little is actually known about endosalpingiosis. From what I understand it behaves much like endometriosis in how it spreads and the damage and pain it causes.
Recovery was a bit bumpy the first month or so. I felt so much better but whenever I tried to do anything I ended up hurting myself and setting back my recovery.
Now almost 9wks after surgery I'm improving. Slowly but surely I'm getting better than before surgery. I am having more good days than before surgery but at this point I think I'm still having more bad days than good. But as my recovery goes on I keep getting more and more good days. I still have flare ups(currently having one :( ). BUT I've had so many break throughs since surgery. Emptying my bladder is no longer painful, in general bathroom time is no longer painful. I wore jeans for 5hrs one day! Haven't been able to tolerate jeans for more than a few minutes in 2yrs now. I've also been able to go days without taking any pain meds. And have been going milking with Sam more often and not have to take meds to do so. I'm really excited to see how I'll continue to improve. It's going to be a long road but it looks like I'm finally headed in the right direction :)
WARNING pictures of actual surgery and surgical incisions below
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| Incisions the day after surgery |
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| Right rim of the peritoneal cavity |
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| Arrows are pointing out blisters |
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| Burned leasion |
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| More blisters |
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| Dotted line shows prior excision margins |
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| Behind my uterus, dotted line shows prior excision, new blisters are circled |
