The hardest part of the morning is probably when I first wake up and I
take "inventory" of how my body feels. Morning after morning one of the
first things to register is pain. Then disappointment. Disappointment
that the day will undoubtedly be tainted with pain. Disappointment that
again I can't do the things I used to without causing great pain.
Disappointment that I'll see the pain and anguish in my parents eyes as
they watch me writhe in pain. The helplessness I see in Sam's eyes as he
tries to comfort me. Disappointment that it will be another day of just
surviving, not living. Disappointment that it will be another day in
isolation.
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